Living with Type 1 Diabetes – and Building the Knowledge Needed for Better Care 

Posted on 08.06.2026

As a paediatrician, researcher, and person living with type 1 diabetes, Dr. Leonard Malasa is working to build the knowledge needed for better care.  

For Dr. Leonard Malasa, type 1 diabetes is both a professional commitment and a personal reality.

As a paediatrician and lecturer in the Department of Paediatrics and Child Health at Kairuki University, in Dar es Salaam, Tanzania, he trains future healthcare professionals, mentors young researchers and provides care for children with chronic diseases. At the same time, he is also living with type 1 diabetes himself.

Video: Watch Leonard how to build knowledge for better care.

A Family Story Shaped by Diabetes 

Type 1 diabetes has been part of his family’s story for many years. His older brother was diagnosed with the condition at a young age, but only after a prolonged period of illness and visits to several health facilities. Unfortunately, the diagnosis came too late to save his life. The dual experience as a healthcare professional and a person living with diabetes has given him a unique perspective on the challenges faced by people with type 1 diabetes in Tanzania.

Photo: Dr. Leonard Malasa performing clinical examination to a sick child

Nothing About Us Without Us

“Nothing about us without us,” Leonard says when describing his engagement in diabetes research and advocacy. Living with the condition helps him understand the realities that patients face beyond the clinic and motivates him to contribute through clinical care, research, education and mentorship

Why Data Matters

Photo: Dr. Leonard Malasa (center) is pictured alongside his medical students

One of the challenges he sees most clearly is the need for stronger knowledge systems. Across Tanzania, access to specialised diabetes services has improved substantially, but generating the evidence needed to further improve care remains difficult. In Sub-Saharan Africa, data are often fragmented, collected in different ways and not always brought together in systems that can support research, quality improvement and decision-making.

For Leonard, this is why strengthening data infrastructure must become part of the broader effort to improve diabetes care.

“Data is critical,” he explains. “It helps healthcare providers plan services, informs policymakers and provides the evidence needed for research.”

Strengthening Research Across Africa 

This commitment extends beyond his own institution. The Early-Career Researcher Network on Type 1 Diabetes brings together early-career researchers from low- and middle-income countries to strengthen collaboration, build research capacity, and improve the use of data for better diabetes care. As part of the network, Leonard is working with colleagues across Sub-Saharan Africa to strengthen research capacity and improve the quality of diabetes data.

Through a series of webinars, collaborative assignments, and cross-country exchanges, the network aims to build stronger foundations for research, clinical care, and policy-making. For Leonard, better data is not an end in itself. It is a tool for making better decisions and ultimately improving the lives of people living with type 1 diabetes.

Training the Next Generation 

Alongside this work, Leonard is already investing in the future. He mentors students interested in diabetes research and hopes to establish a dedicated type 1 diabetes research programme at his institution.

Photo: Dr. Leonard Malasa engages medical students in a hands-on clinical teaching session

“Training, training, training,” he says when asked where he can make the greatest contribution. “My responsibility is to make sure that students graduate with the skills needed to care for individuals with diabetes.”

For Leonard, building better diabetes care starts with building capacity – in people, in research, and in the data systems that make progress possible.

Photo: Dr. Leonard Malasa (center) is pictured alongside his medical students

About the Early-Career Researcher Network on Type 1 Diabetes 

Funding: Danish Ministry of Higher Education and Science – learn more here 

Purpose: To strengthen collaboration, build research capacity, and improve the use of data for better type 1 diabetes care in low- and middle-income countries. 

Network: 28 early-career researchers from 12 countries across Africa: Burkina Faso, Cameroon, Comoros, Djibouti, Ethiopia, Kenya, Malawi, Rwanda, Tanzania, Uganda, Zambia, and Zanzibar. 

Partners: The network is organised through a collaboration between the Danish Diabetes and Endocrine Academy (DDEA), the World Diabetes Foundation (WDF), the EAST African Diabetes Study Group, and the University of Geneva, Faculty of Medicine, and is anchored in Denmark at Steno Diabetes Center Odense. 

Background: Established following the international conference “Type 1 Diabetes – Advancing a Global Road Map for Improved and Integrated Care in Low-Resource Settings” held in Copenhagen in February 2025. 

Current activities: The network continues through webinars, collaborative assignments, and cross-country exchanges, following a second Early-Career Researcher programme held in Tanzania in February 2026. 

Podcast: Type 1 Diabetes Challenges and Actions, part of the DDEA Global Health Podcast series, explores challenges and opportunities in type 1 diabetes care and research in low- and middle-income countries. Listen wherever you get your podcasts or through the link. 

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