Purpose

To support researchers in engaging patients and the public in health research, and to provide knowledge and tools for doing so in practice.

Aims

• Distinguish between trial participation and user involvement
• Provide knowledge of PPI in research, including benefits and challenges
• Provide examples, models and tools for PPI in research

Topics

• History of PPI and recent developments nationally and internationally
• Societal context of PPI, funders’ perspectives and publication
• Methods and tools in PPI, reflection tools, co-design, case-based workshops, statistics
• Patient Voices, lived experience

Speakers

• Molly Byrne, Head of School, University of Galway
• Marcia Carvalho, Royal College of Surgeons Ireland
• Iliatha Papachristou Nadal, King’s College London
• Laura Gray, University of Leicester
• Kristina Staley, independent PPI consultant
• Klaudia Kristensen, Aalborg University Hospital
• Lauge Neimann Rasmussen, Steno Diabetes Center Copenhagen
• Jonas Thorborg Stage, University of Copenhagen
• Oli Williams, Kings College London
• Tracey Abbott, Public contributor, D-Stress Patient Forum
• Søren Dixen, Maskine Maskine Amager

Organising Committee

• Ingrid Willaing, Professor & Consultant, Public Health
• Tore Christiansen, Managing Director, DDEA
• Lauge Neimann Skov, Steno Diabetes Center Copenhagen
• Jonas Thorborg Stage, University of Copenhagen
• Julie Bjerrelund, Odense University Hospital
• Camilla Hamre, DDEA Public Advisory Panel
• Maja Michaelsen, DDEA Public Advisory Panel

This PhD course is aimed at PhD students and postdocs within diabetes and endocrine research, including clinical, basic, translational, psychosocial, epidemiological and interdisciplinary research.

Priority is given to participants employed at Danish research and health institutions or in the life science industry. A number of seats are reserved for participants employed abroad. If the event is overbooked, DDEA reserves the right to select participants based on the criteria above.